Well here I am again. I’m sorry its been so long. I thought I’d give you an update on where I’m at since its been six months since I’ve posted a blog with words. If you want to know about my medical details you can go to www.samfroggatt.blogspot.com If you dont already know, this is where hospital visits have been recorded since day I was diagnosed.
So I’ve finished my first year back at uni. I’ve overcome my shaky hands, (as I was talking about last march). I did really well considering I was still so sick. I changed my single education degree to a double degree in education and linguistics. Call me crazy. So now I am preparing to enrol for another three years of university. It will be worth it in the end.
I have continued making little soft toys… I posted one of them a while ago, one that I made while in hospital, Graham and Alice in Wonderful. Go back and have a look. This has been my way of enjoying the time I spend at home on my own. These toys have led me to creating a business called “x the boys” said as “kiss the boys” but i thought the “x” for kiss was a cute symbol. Anyway I have made lots of sales for adults and babies as well as teens and early 20’s. Please have a look at my website. Each design is made to order. You can choose colours and styles. How fun! Here are some photos of some I have sold and made that are still available! Click on the to go to the website.
In November I began casual work again. At first it was so painful on my back because I was standing up on hard ground. It put pressure on my lower back where the muscles and tissues are so tight because of my previous lumbar punctures and bone marrow biopsies. I almost decided not to go through with it but something told me to try again. So I took 2 weeks off to let my back recover and I went back. It was really cool because I worked with some really fun people the next few times which changed my outlook of everything. I knew if I kept showing up (keeping boundaries with my health) I would eventually get the hang of it. Since I am just a christmas casual, I might not be able to work here at the end of the month. I’m praying they keep me!
Last summer I had to stay inside all day every day as the heat used to give me fevers with shakes and sweats, this year i have been out on hot days on the beach, staying under the shade of an umbrella. But I do now react to the heat anymore. Today I go to the hospital again for my month intragam infusion that is three hours long. This week I have come off 10 prednisone to 5 prednisone and on the 17th I drop my immuno-suppressants from 50 to 40. This is a huge thing since I’ve been on them for 14 months. Next week I go for all my immunisations/baby needles again since I have a whole new body, its like I’m being born again.
You’re prayers are still important to me. There’s still a long way to go. But I see the end in sight.